WHO OWNS MY GENOME?
Debating public and private uses of genetic data
Thursday 7th July 6.30-8.30 pm. Meadows Lecture Theatre - Doorway 4, Medical School, Teviot Place, Edinburgh, EH8 9AG
Genomic medicine is evolving quickly, and data are being collected on a group of patients with rare diseases and cancers across the UK, including Scotland. There’s large potential for the technology to help us create new treatments and preventative approaches. Someone’s genome can explain lots of things about them but we don’t yet understand all of what the genetic code means. This information therefore needs to be collected and stored securely, interpreted by experts and viewed in a way that protects the donor’s identity. There have been discussions among scientists about the implications of genomic medicine for privacy and the NHS, and the British Science Association (BSA) believes that it is vital to open that conversation up to the public.
The Edinburgh and SE Scotland Branch of the BSA and Edinburgh Medical School are therefore holding a public future debate chaired by Sarah Cunningham-Burley, Professor of Medical and Family Sociology at Edinburgh University. After short talks from a panel of experts the debate will be opened up to those attending.
The event (for 16+) is free to attend but please register on Eventbrite under Edinburgh Science & Tech Events Eventbrite (Future Debate) for administrative purposes and for giving us your evaluation of the evening.